Navigating the information on ZARD can be daunting, confusing and frustrating, not only for newly diagnosed families but for everyone within our small community.  

We have prepared an “Information pack”, consisting of relevant documents, which will give you a great amount of accurate and organized information not only about our community but also about the condition.  

Please feel free to download and print these documents, to share with your doctors, therapists, care givers, or anyone involved in the care of your child.